{"id":5564,"date":"2026-05-11T10:21:05","date_gmt":"2026-05-11T08:21:05","guid":{"rendered":"https:\/\/esclerosismultiplegalicia.org\/?p=5564"},"modified":"2026-05-11T10:22:50","modified_gmt":"2026-05-11T08:22:50","slug":"esclerose-multiple-os-sintomas-invisibles-e-o-camino-ata-o-diagnostico","status":"publish","type":"post","link":"https:\/\/esclerosismultiplegalicia.org\/index.php\/2026\/05\/11\/esclerose-multiple-os-sintomas-invisibles-e-o-camino-ata-o-diagnostico\/","title":{"rendered":"Esclerose M\u00faltiple, os s\u00edntomas invisibles e o cami\u00f1o ata o diagn\u00f3stico"},"content":{"rendered":"\n

A Esclerose M\u00faltiple (EM)<\/a><\/strong> segue a ser unha enfermidade arrodeada dunha morea de estigmas e prexu\u00edzos. Cando provoca s\u00edntomas invisibles, isto a\u00ednda medra m\u00e1is. Fatiga extrema, vertixes, alteraci\u00f3ns cognitivas, dor ou problemas de equilibrio forman parte do d\u00eda a d\u00eda de miles de persoas que contin\u00faan enfront\u00e1ndose \u00e1 incomprensi\u00f3n e ao retraso no diagn\u00f3stico.<\/p>\n\n\n\n

En Espa\u00f1a, no 2023 foron atendidos na atenci\u00f3n primaria m\u00e1is de 68.000 casos<\/strong> con EM, segundo o proxecto EMDATA de Esclerosis M\u00faltiple Espa\u00f1a<\/a>. A pesares de que o n\u00famero de diagn\u00f3sticos vai aumentando co tempo e cada vez s\u00e1bese m\u00e1is desta enfermidade, un dos principais desaf\u00edos \u00e9 identificar a EM a tempo, especialmente cando os s\u00edntomas son intermitentes, cambiantes ou se confunden con outras causas.<\/p>\n\n\n\n

A experiencia da poeta e cantautora catal\u00e1 Ivette Nadal<\/strong> reflicte unha realidade que comparten moitas persoas con EM: anos de s\u00edntomas antes de obter un diagn\u00f3stico.<\/p>\n\n\n\n

Cando os s\u00edntomas non encaixan nunha soa explicaci\u00f3n<\/h2>\n\n\n\n

A Esclerose M\u00faltiple pode manifestarse de formas moi diveresas, por iso recibe o nome da enfermidade das mil caras<\/strong>. Alg\u00fans dos s\u00edntomas posibles son os problemas de visi\u00f3n, formigo, alteraci\u00f3ns motoras, espasmos, fatiga, dificultade para falar (afaxia) ou para tragar (disfaxia)… Esta diversidade de s\u00edntomas \u00e9, en parte, unha das causas polas que o diagn\u00f3stico a mi\u00fado se retrasa. <\/p>\n\n\n\n

Durante unha entrevista concedida a La Vanguardia<\/a>, Nadal explicou que conviviu durante anos con sinais aparentemente inconexas:<\/p>\n\n\n\n

\n

\u201cUn d\u00eda v\u00eda borroso dun ollo, outro sent\u00eda que cami\u00f1aba coxeando dunha perna ou notaba sensaci\u00f3ns raras en diferentes partes do corpo\u201d, afirma Nadal.<\/p>\n<\/blockquote>\n\n\n\n

En plena pandemia pola Covid-19, moitos destos s\u00edntomas foron atribuidos ao estr\u00e9s ou \u00e1 ansiedade. Unha situaci\u00f3n que non resulta illada, especialmente en mulleres novas<\/strong>, onde en ocasi\u00f3ns os s\u00edntomas inciais poden interpretarse por motivos emocionais ou psicol\u00f3xicos, deixando entrever o nesgo de x\u00e9nero<\/strong> dos propios sistemas sanitarios.<\/p>\n\n\n\n

A propia Nadal reco\u00f1ece o impacto de non sentirse escoitada durante o proceso:<\/p>\n\n\n\n

\n

\u201cCando levas anos dicindo que algo non vai ben no teu corpo e parece que non te cren, iso xera moit\u00edsima frustraci\u00f3n\u201d.<\/p>\n<\/blockquote>\n\n\n\n

O diagn\u00f3stico temper\u00e1n en EM<\/h2>\n\n\n\n

O diagn\u00f3stico precoz<\/strong> \u00e9 moi importante en enfermidades como a EM, xa que detectala a tempo permite iniciar canto antes os tratamentos modificadores que axudan a frear a progresi\u00f3n do dano neurol\u00f3xico.<\/p>\n\n\n\n

Por\u00e9n, chegar ao diagn\u00f3stico non sempre resulta sinxelo. A EM pode aparecer en forma de brotes<\/strong>, con s\u00edntomas que desaparecen parcialmente e volven tempo despois. Ademais, moitas manifestaci\u00f3ns son invisibles <\/strong>dende o exterior. <\/p>\n\n\n\n

No caso de Nadal, pasaron entre 4 e 5 anos dende os primeiros s\u00edntomas ata recibir o diagn\u00f3stico definitivo. Un periodo marcado polas probas m\u00e9dicas, a incertidume e un deterioro f\u00edsico progresivo. Non obstante, na actualidade cada vez se investiga m\u00e1is e se traballa para lograr diagn\u00f3sticos temper\u00e1ns, con t\u00e9cnicas como an\u00e1lises de sangue, resonancias magn\u00e9ticas, punci\u00f3n lumbar…<\/p>\n\n\n\n

Os s\u00edntomas invisibles tam\u00e9n afectan<\/h2>\n\n\n\n

Habitualmente tense unha imaxe estereotipada do que \u00e9 a EM, asoci\u00e1ndoa s\u00f3 a discapacidade f\u00edsica visible. Pero moitas persoas conviven con s\u00edntomas limitantes que non sempre se perciben dende o exterior. <\/p>\n\n\n\n

A fatiga <\/strong>\u00e9 un dos m\u00e1is frecuentes. \u00c9 un esgotamento extremo que incluso impide a realizaci\u00f3n de actividades b\u00e1sicas da vida diaria. Nadal descr\u00edbea as\u00ed:<\/p>\n\n\n\n

\n

\u201cNon \u00e9 estar cansa e recuperarte despois de durmir; \u00e9 un esgotamento brutal, coma se o corpo se apagara. Hai d\u00edas nos que literalmente non podes levantarte da cama e non sabes moi ben por que\u201d.<\/p>\n<\/blockquote>\n\n\n\n

A elo s\u00famanse as vertixes<\/strong>, os problemas de equilibrio, os espasmos musculares ou as dificultades cognitivas e de comunicaci\u00f3n, s\u00edntomas que poden afectar \u00e1 autonom\u00eda persoal, ao emprego e \u00e1 vida social.<\/p>\n\n\n\n

A incomprensi\u00f3n social ante unha enfermidade invisible<\/h2>\n\n\n\n

Unha das cuesti\u00f3ns m\u00e1is dif\u00edciles de vivir coa EM \u00e9 a falta de comprensi\u00f3n social<\/strong> cando a enfermidade non \u00e9 evidente fisicamente. <\/p>\n\n\n\n

Moitas persoas con EM reciben preguntas e cuestionamentos constantes porque parecen estar ben<\/em>. Isto ocorre especialmente en espazos p\u00fablicos, contornas laborais ou incluso dentro de c\u00edrculos pr\u00f3ximos.<\/p>\n\n\n\n

En palabras de Nadal:<\/p>\n\n\n\n

\n

\u201cNo transporte p\u00fablico moitas veces preciso sentarme porque te\u00f1o vertixes ou unha fatiga brutal, pero ningu\u00e9n o percibe. Venme nova e pensan que estou perfectamente\u201d.<\/p>\n<\/blockquote>\n\n\n\n

Este tipo de situaci\u00f3ns reflicten a necesidade de seguir sensibilizando sobre as enfermidades invisibles e sobre o impacto na vida que te\u00f1en s\u00edntomas como a fatiga, a dor neurop\u00e1tica, a incontinencia ou as alteraci\u00f3ns cognitivas.<\/p>\n\n\n\n

Rehabilitaci\u00f3n, apoio psicol\u00f3xico e adaptaci\u00f3n<\/h2>\n\n\n\n

A atenci\u00f3n m\u00e9dica na EM \u00e9 fundamental, pero debe acompa\u00f1arse doutras terapias como a rehabilitaci\u00f3n f\u00edsica, cognitiva e logop\u00e9dica, que poden ser axudas fundamentais para manter a calidade de vida da persoa<\/strong>. \u00c9 dicir, na Esclerose M\u00faltiple \u00e9 imprescindible unha atenci\u00f3n integral adaptada \u00e1s necesidades de cada persoa.<\/p>\n\n\n\n

O impacto emocional do diagn\u00f3stico<\/strong> adoita ser profundo e complicado. Afrontar a incertidume, os cambios e as posibles limitaci\u00f3ns futuras require un acompa\u00f1amento psicol\u00f3xico especializado e redes de apoio estables.<\/p>\n\n\n\n

Precisamente por elo, Nadal recomenda a quen reciba un diagn\u00f3stico recente:<\/p>\n\n\n\n

\n

\u201cQue busque axuda psicol\u00f3xica canto antes e que se achegue a grupos de persoas que estean pasando polo mesmo. Hai moitas cou sas que s\u00f3 entende algu\u00e9n que ten a enfermidade (…). Falar con algu\u00e9n que os vive faite sentir acompa\u00f1ada e comprendida. Tam\u00e9n recomendar\u00eda afastarse un pouco das redes sociais, porque hai moita xente vendendo remedios milagre ou soluci\u00f3ns estranas\u201d.<\/p>\n<\/blockquote>\n\n\n\n

Fonte:<\/h3>\n\n\n\n

https:\/\/www.lavanguardia.com\/magazine\/bienestar\/20260509\/11533551\/ivette-nadal-vive-esclerosis-multiple-transporte-publico-me-ven-joven-piensan-perfectamente-necesito-sentarme-muchas-veces-vertigos-fatiga.html<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

A Esclerose M\u00faltiple (EM) segue a ser unha enfermidade arrodeada… Ler m\u00e1is sobre Esclerose M\u00faltiple, os s\u00edntomas invisibles e o cami\u00f1o ata o diagn\u00f3stico<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":5483,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"footnotes":""},"categories":[103],"tags":[113],"class_list":["post-5564","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novas","tag-experiencias"],"yoast_head":"\nEsclerose M\u00faltiple, os s\u00edntomas invisibles e o cami\u00f1o ata o diagn\u00f3stico - FEGADEM<\/title>\n<meta name=\"description\" content=\"A poeta Ivette 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