{"id":4720,"date":"2025-12-17T10:22:45","date_gmt":"2025-12-17T09:22:45","guid":{"rendered":"https:\/\/esclerosismultiplegalicia.org\/?p=4720"},"modified":"2025-12-17T11:11:05","modified_gmt":"2025-12-17T10:11:05","slug":"fegadem-presentou-o-libro-infantil-de-os-bolechas-sobre-a-esclerose-multiple","status":"publish","type":"post","link":"http:\/\/esclerosismultiplegalicia.org\/index.php\/2025\/12\/17\/fegadem-presentou-o-libro-infantil-de-os-bolechas-sobre-a-esclerose-multiple\/","title":{"rendered":"FEGADEM presentou o libro infantil de Os Bolechas sobre a Esclerose M\u00faltiple"},"content":{"rendered":"\n

O pasado s\u00e1bado 13 de decembro, a Federaci\u00f3n Galega de Esclerose M\u00faltiple (FEGADEM) <\/strong>presentou o seu libro infantil Os Bolechas. A profesora Celia ten Esclerose M\u00faltiple<\/strong><\/em>. Este pretende ser unha ferramenta para informar aos nenos e nenas sobre esta enfermidade.<\/p>\n\n\n\n

O acto de presentaci\u00f3n<\/h3>\n\n\n\n

A presentaci\u00f3n foi a ma\u00f1\u00e1 do s\u00e1bado 13 no Espazo Educativo e de Lecer Mar\u00eda Miramontes<\/a><\/strong>, en Santiago de Compostela. Enmarcouse nas actividades de Nadal deste centro, ademais de celebrarse co gallo do D\u00eda Nacional da Esclerose M\u00faltiple<\/strong> (18 de decembro). Ao acto asistiron nenos, nenas, familias e persoas con EM, formando as\u00ed un espazo de encontro diverso e de sensibilizaci\u00f3n. <\/p>\n\n\n\n

\n
\"\"
Exemplares do libro e do xogo de cartas expostos<\/figcaption><\/figure>\n\n\n\n
\"\"
Lectura do libro aos nenos e nenas<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

<\/p>\n\n\n\n

Tralos discursos m\u00e1is institucionais, as t\u00e9cnicas do Espazo Educativo encarg\u00e1ronse de ler o libro<\/strong> aos nenos e nenas. Despois, repartiuse un xogo de cartas <\/strong>elaborado pola Federaci\u00f3n para que a infancia comprendera como poder axudar con pequenas acci\u00f3ns \u00e1s persoas con EM que o precisan. Para rematar, puideron disfrutar das actividades <\/strong>que o centro preparou para eles e elas. Cada familia marchou do acto cun exemplar do libro e unha baralla de cartas dos Bolechas e a Esclerose M\u00faltiple.<\/p>\n\n\n\n

\n
\"\"
Xogando ao xogo<\/figcaption><\/figure>\n\n\n\n
\"\"
O xogo de cartas<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

Un libro para educar en inclusi\u00f3n e respecto<\/h3>\n\n\n\n

Este libro, iniciativa de FEGADEM<\/strong>, forma parte da colecci\u00f3n Os Bolechas<\/em>, da Editorial Bolanda<\/a>. Narra a experiencia da profesora Celia convivindo coa Esclerose M\u00faltiple<\/a>. A trav\u00e9s de informaci\u00f3n sinxela e clara, o libro permite que os nenos e nenas comprendan a enfermidade dun xeito natural. Fom\u00e9ntanse valores como a empat\u00eda, a inclusi\u00f3n, o respecto \u00e1 diversidade e a solidariedade<\/strong>.<\/p>\n\n\n\n

Tal e como sinalou Teresa Gonz\u00e1lez, presidenta de FEGADEM<\/strong>, durante o acto:<\/p>\n\n\n\n

\n

\u201c\u00c9 importante educar dende a infancia para promover unha sociedade m\u00e1is informada e inclusiva.\u201d<\/em><\/p>\n<\/blockquote>\n\n\n\n

\n
\"\"
Teresa Gonz\u00e1lez, presidenta de FEGADEM, no seu discurso<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

<\/p>\n\n\n\n

A informaci\u00f3n e a educaci\u00f3n dende idades temper\u00e1s permite traballar para loitar contra o desco\u00f1ecemento<\/strong> e combater os estigmas asociados \u00e1 Esclerose M\u00faltiple.<\/p>\n\n\n\n

O libro como recurso educativo<\/h3>\n\n\n\n

Este libro infantil conta, dun xeito positivo e adaptado \u00e1 infancia<\/strong>, conceptos b\u00e1sicos para comprender a Esclerose M\u00faltiple. A mielina, o funcionamento do sistema nervioso central, os s\u00edntomas da enfermidade, os tratamentos, os\/as profesionais, o papel das asociaci\u00f3ns…<\/p>\n\n\n\n

Deste xeito, este libro \u00e9 un recurso educativo \u00fatil para as escolas, bibliotecas e familias que traballan por unha sociedade m\u00e1is xusta e informada.<\/p>\n\n\n\n

Agradecementos<\/h3>\n\n\n\n

Dende a Federaci\u00f3n agradecemos a todas as persoas que asistiron ao acto, as\u00ed como ao persoal do Espazo Educativo e de Lecer Mar\u00eda Miramontes polo seu traballo. A Bego\u00f1a Abeij\u00f3n<\/strong>, Directora da Secretar\u00eda Xeral de Persoas con Discapacidade da Xunta de Galicia, polo seu apoio constant\u00e9 \u00e1 Federaci\u00f3n. E a Goretti Sanmart\u00edn<\/strong>, alcaldesa da cidade compostel\u00e1, polo seu traballo diario en favor do eido social.<\/p>\n\n\n\n

\n
\"\"
Bego\u00f1a Abeij\u00f3n, no seu dicurso<\/figcaption><\/figure>\n\n\n\n
\"\"
Goretti Sanmart\u00edn no seu discurso. \u00c1 dereita, Miriam Louzao<\/figcaption><\/figure>\n<\/figure>\n\n\n\n

<\/p>\n\n\n\n

Agradecer tam\u00e9n a Miriam Louzao<\/strong>, Concelleira de Capital Cultural, Turismo, Educaci\u00f3n e Memoria Hist\u00f3rica, pola asistencia e o apoio. E ao resto de autoridades do Concello de Santiago de Compostela: do Partido Popular a Nerea Barcia<\/strong> e Yolanda Otero<\/strong>, e as non adscritas Mercedes Ros\u00f3n<\/strong> e Gonzalo Mu\u00ed\u00f1os<\/strong>. <\/p>\n\n\n\n

A presenza institucional sempre \u00e9 importante \u00e1 hora de visibilizar as necesidades dun colectivo e defender os seus dereitos<\/strong>, as\u00ed como mellorar a s\u00faa calidade de vida<\/strong>.<\/p>\n\n\n\n

Dispo\u00f1ibilidade do libro<\/h3>\n\n\n\n

O libro estar\u00e1 proximamente dispo\u00f1ible en bibliotecas e escolas<\/strong> de toda Galicia. <\/p>\n\n\n\n

Se queres contar con alg\u00fan exemplar na t\u00faa escola ou biblioteca, contacta con FEGADEM<\/a><\/strong> e explicar\u00e9mosche como facerte co teu. <\/p>\n","protected":false},"excerpt":{"rendered":"

O pasado s\u00e1bado 13 de decembro, a Federaci\u00f3n Galega de… Ler m\u00e1is sobre FEGADEM presentou o libro infantil de Os Bolechas sobre a Esclerose M\u00faltiple<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":4723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"footnotes":""},"categories":[103],"tags":[13,106],"class_list":["post-4720","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novas","tag-fegadem","tag-recursos"],"yoast_head":"\nFEGADEM presentou o libro infantil de Os Bolechas sobre a Esclerose M\u00faltiple - FEGADEM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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